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about cancer incidence data

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  • For each data source, information about data collection and analytical methods, limitations, the citation and additional resources can be found on the Data Sources and Methods page.

DATA SOURCE

Original Source: Cancer Care Ontario (CCO)
Distributed by: Cancer Care Ontario
Cite as: Ontario Cancer Incidence Database 1986-2009, Cancer Care Ontario, Release: SEER*Stat Release 9 OCRIS (May 2012) released October 2012

METHODS

Data collection methods

  • The Ontario Cancer Registry (OCR), housed at Cancer Care Ontario, is a computerized database of information on all Ontario residents who have been newly diagnosed with cancer ('incidence') or who have died of cancer ('mortality').
  • All types of cancer are registered, except non-melanoma skin cancer. The system is passive and relies predominantly on administrative data.
  • The Registry is compiled by linking administrative data, clinical and demographic data from four major data sources:
    • Hospital discharge and ambulatory care records with cancer diagnoses in the CIHI (Canadian Institute of Health Information) DADS and NACRS databases (Discharge Abstract Database and National Ambulatory Care Reporting System),
    • Pathology reports with any mention of cancer from hospitals and private laboratories,
    • Records from Regional Cancer Centres or Princess Margaret Hospital, and
    • Ontario death certificates with cancer as the underlying cause of death.
  • All cancer-related data on these records are reviewed by an electronic system of medical logic to produce consolidated information about the cancer diagnosis.
  • Cancer diagnoses are classified according to the International Classification of Diseases for Oncology, 3rd edition (ICDO-3).

Analysis methods

  • Analyses are conducted using the SEER*Stat Rate Session function, and, age-adjusted rates that have been standardized to the 1991 Canadian total population.
  • 95% confidence intervals and standard errors are also calculated in the program.
  • Ontario incidence data from the OCR are included in the annual Canadian Cancer Statistics publication for comparison with other provinces and territories; because of submission dates to the Canadian Cancer Registry, these published data will differ slightly from data published or obtained directly from Cancer Care Ontario.
  • Rates and proportions based on counts less than six (6) are suppressed.

LIMITATIONS

  • Currently, this data source only provides information at the Census Division (CD) or Public Health Unit (PHU) level of geography.
  • The population data source is not as current as that used for other analyses.

REFERENCES AND RESOURCES

  1. Cancer Care Ontario.
  2. National Cancer Institute of Canada: Canadian Cancer Statistics 2009, Toronto, Canada, 2009.


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